this post was submitted on 15 Jun 2023
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T1Diabetes

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1 users here now

A place for people with T1 diabetes.

founded 1 year ago
MODERATORS
 

Please take a few minutes to introduce yourself here. Like many, I am someone who was active on both /r/diabetes and /r/diabetes_t1 over on Reddit and am hoping to recreate some semblance of a community here. I've been a T1 since 1983 and am currently using the Omnipod and Dexcom G7 with DIY Loop. Diabetes has definitely been a struggle for me at times, but I am really fortunate that I've been able to access such amazing technology.

So who else is here?

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[–] Floofah 3 points 1 year ago (1 children)

Also a Reddit refugee. Been T1 for 64 years since 1959, on MDI and finger pricks. Where I live CGM’s are not subsidised, and the cost is too much for me. I keep very stable and log every blood test. My daily average for the past 3 months is 132 (7.3) determined from 6-7 tests/day. Due for a HbA1c check soon. I calculate my expected HbA1c from the test values, it’s very close most times.

[–] nightscout 1 points 1 year ago (1 children)

Wow that’s incredible! You have me beat by a couple of decades. Welcome!

[–] Floofah 2 points 1 year ago

Thanks. I never posted much at "the old place", but did make great friendships with a couple of T1’s on there, hopefully we’ll be able to continue, though I guess it depends on what happens on/after July 1.

[–] mellitusgull 3 points 1 year ago

Hi,

I discovered reddit, r/diabetes_t1 and my disease in 2014. I was a lurker all this time but learned so much from the subreddit.

Now I'm a refugee too !

Hoping this community will help others as r/diabetes_t1 did for me

[–] Floofah 2 points 1 year ago* (last edited 1 year ago) (1 children)

Just tried to post a new thread, but it never gets posted. Have tried using the Memmy app, also web browser. Trying a comment here to see if that works.

Edit: Well yes, that worked. Will try a new post again.

Edit 2: I still can’t create a new post, it just sits there, never completing.

[–] nightscout 1 points 1 year ago (1 children)

It might be that Lemmy is overwhelmed. I've had that happen sometimes.

[–] Floofah 2 points 1 year ago (1 children)

I did wonder that. I guess this weekends Reddit app stop will up the Lemmy user count.

I’ll try again, thanks ….

[–] nightscout 1 points 1 year ago (1 children)

Please try again and let me know what happens. It’s possible there’s some group setting issue, but I checked and anyone should be able to post to the group.

[–] Floofah 2 points 1 year ago (1 children)

When I tried it again several hours later, it posted instantly.

I should’ve replied here to let you know, sorry about that.

[–] nightscout 1 points 1 year ago

No worries. I saw it. Thanks for confirming. Hoping to get some more activity from those migrating from reddit or just looking for an alternative.

[–] SydneyBriarIsAlive 2 points 1 year ago (1 children)

coming from reddit as well. I was diagnosed in 1997. I got a Dexcom G6 and pen needles (Lantus and Humalog) =)

[–] nightscout 3 points 1 year ago (1 children)

Welcome! I made a post today on r/diabetes_t1 to help direct people here. Hopefully that will help give people the option of coming together outside of Reddit.

[–] SydneyBriarIsAlive 3 points 1 year ago

Here's hoping, I imagine the numbers here on Lemmy will get bigger as Reddit continues to stumble.

[–] [email protected] 1 points 1 year ago

Thanks for setting it up! I’m a major lurker, here and on reddit, but I am T1D and I’d like to have a community here on Lemmy, so I guess I need to contribute to make that happen!

I’ve been living with T1 since 2007, diagnosed as an adult and feel very fortunate for that I didn’t have to deal with this bullshit while growing up.

I’ve been using Medtronic pumps for 12 of those years, CGM on and off, depending sensor costs. I’m about to start using the 780g and the new no calibration CGM sensors.

[–] AmIAwake 1 points 1 year ago

My son was diagnosed at 7 years old in April of 2022. He uses a dexcom g6 and MDI with the inpen. He has no interest in a pump, yet. Been doing pretty decent considering, last A1C was 5.8. Good to be here since I loved the t1 community on reddit.

[–] joedinkle 1 points 1 year ago

Hi all! I was diagnosed with LADA a few weeks ago. My sugars float between the mid 80s and 1-teens with diet and exercise, but who knows how long that will last. Trying to learn as much as I can.